www.pbcnews.info is a patient-led online resource in German for PBC patients, their friends and families, run by Kautz5 gUG since 2017. The website provides patient-relevant disease information, patient support material (all available for download) and a list of doctors specialising in PBC management. All content is reviewed by a panel of scientific experts. The website is complemented by several additional community-building formats (online meetings and seminars).
Since its launch, this online community has successfully grown to a considerable reach: in 2024 the website counted 60.000 visitors, including 48.000 unique visitors and 12.000 regular return visitors.
The site is supported by Advanz Pharma and Ipsen Pharma GmbH.
PBC Homepage